About OHCRN

OHCRN is a collaborative network of health care providers, laboratory scientists, researchers, patients and patient advocates working to improve access to research, clinical trials and existing cancer registries.

The online OHCRN registry was created to gather and centralize genetic and cancer-related data on inherited cancer syndromes in Ontario which will be used to inform research.

We are committed to empowering Ontarians with information and envision a future where the research and medical communities work seamlessly together to advance shared objectives and improve patient outcomes.

Learn More

Individuals with a known or suspected hereditary cancer syndrome are eligible to join the OHCRN registry.

For Participants

Refer your patients with hereditary cancer syndromes to participate in the OHCRN registry.

For Clinicians

By securely collecting data into an online registry, OHCRN helps researchers access information that can advance cancer care.

For Researchers

OHCRN Registry

Information from individuals with hereditary cancer syndromes can be used to understand the biology, prevention, early detection and treatment of cancer. By securely collecting data into an online registry, OHCRN helps researchers access information that can advance cancer care.

Coming Soon in 2025

Participants
enrolled in OHCRN

Genetic clinics
involved with OHCRN

Research studies
approved by OHCRN

Note: The number of participants, participating clinics, and approved research studies will be regularly updated as new information becomes available.

“Bringing information together from Ontario’s patients and families affected by hereditary cancer through OHCRN will create a valuable resource for research that can lead to better methods for cancer detection and treatment. My hope is that future generations, including my own children, will benefit from this important work.”

OHCRN Patient Partner

“OHCRN recognizes the value of including patient partners as part of the team, implementing our voices, concerns and recommendations as ’true’ partners rather than feeling we are ’token’ members. I feel privileged to be part of this first of its kind of registry in Canada.”

OHCRN Patient Partner

“OHCRN means so much to me knowing that I am helping doctors learn more about hereditary cancers and how to best treat them. I know it will help me learn more about my future and my genetics.”

OHCRN Patient Partner

“Being involved as a patient partner during such a critical time in OHCRN’s evolution has been an extremely positive experience. The opportunity for meaningful collaboration. and the ability to be a voice at the table on behalf of current and future patients has been both rewarding and empowering.”

OHCRN Patient Partner

“The development of OHCRN is a significant milestone for the patient community, and will serve as an invaluable resource for information. As a patient partner, I’m able to use my experience and perspective to inform its development and evolution, and I’m extremely thankful for the opportunity to share, contribute and learn.”

OHCRN Patient Partner