About OHCRN Research

OHCRN aims to advance research into hereditary cancer syndromes through collaboration, data linkage and sharing of information.

Research studies interested in using OHCRN data can apply and undergo a review process by the relevant OHCRN sub-committee. Researchers need to have appropriate ethics approval in place.

View OHCRN Data

Data will be available through the research portal for ethics approved research projects.

Some OHCRN data access will be possible at no cost. Researchers may be responsible for some cost recovery associated with accessing OHCRN-linked data and are responsible for costs associated with their study.

Existing Cancer Hereditary Registries

OHCRN is collaborating with existing registries in Ontario to facilitate information sharing. Participants can choose to have OHCRN share their contact information with the following registries, if eligible.

The Ontario Breast Screening Program (OBSP) 

Run by Cancer Care Ontario and enrolls patients at increased risk of developing breast cancer into high-risk breast screening with early mammography and breast MRI.

Ontario Breast Screening Program

The Ontario Familial Breast Cancer Registry (OFBCR)

Run by Sinai Health and maintains the population-based National Institute of Health-funded registry to facilitate genetic and epidemiologic studies.

Ontario Familial Breast Cancer Registry

The Familial Gastrointestinal Cancer Registry (FGICR)

Run by the Zane Cohen Centre at Sinai Health and enrolls hereditary colon cancer, polyposis and Lynch syndrome patients.

Zane Cohen Centre

The Familial Breast Cancer Research Unit

Run by Women’s College Research Institute and which enrolls BRCA1/2 and PALB2 carriers to explore strategies to prevent and manage inherited cancers in high risk families.

Women’s College Research Institute

Cancer Research at SickKids Research Institute

Run by The Hospital for Sick Children and enrolls children and families who are at an increased genetic risk for cancer.

Cancer Genetics Program