Ontario Hereditary Cancer Research Network

“Bringing information together from Ontario’s patients and families affected by hereditary cancer through OHCRN will create a valuable resource for research that can lead to better methods for cancer detection and treatment. My hope is that future generations, including my own children, will benefit from this important work.”

“OHCRN recognizes the value of including patient partners as part of the team, implementing our voices, concerns and recommendations as ’true’ partners rather than feeling we are ’token’ members. I feel privileged to be part of this first of its kind of registry in Canada.”

“OHCRN means so much to me knowing that I am helping doctors learn more about hereditary cancers and how to best treat them. I know it will help me learn more about my future and my genetics.”

“Being involved as a patient partner during such a critical time in OHCRN’s evolution has been an extremely positive experience. The opportunity for meaningful collaboration. and the ability to be a voice at the table on behalf of current and future patients has been both rewarding and empowering.”

“The development of OHCRN is a significant milestone for the patient community, and will serve as an invaluable resource for information. As a patient partner, I’m able to use my experience and perspective to inform its development and evolution, and I’m extremely thankful for the opportunity to share, contribute and learn.”